A woman in her early 20s, Addeson Stanley, has been unable to eat a full meal for over a year due to a rare condition that has left her with a paralysed stomach. Addeson first noticed symptoms such as feeling full quickly, nausea, vomiting, and bloating in May 2021, shortly after being diagnosed with the Epstein-Barr virus. Initially attributing her symptoms to the virus, Addeson sought medical help when she lost 35lbs within six months. Doctors initially believed her symptoms were related to the virus passing through her system, but her condition worsened, leading her to see a specialist in July 2021.
After undergoing tests, Addeson’s gallbladder was found to be paralysed, and she had it removed in August 2021. However, her symptoms persisted, and a different specialist diagnosed her with gastroparesis, paralysis of the stomach, just weeks after her gallbladder surgery. Currently, Addeson is being fed through a surgical tube, unable to enjoy her favourite foods like fruits and vegetables. She describes her current diet as predominantly processed foods like chips, cereal, ice cream, and soft food.
Addeson shared that traditional healthy foods like salads can linger in her stomach for days, posing a risk of spoilage. Despite her challenges, she remains hopeful for the future when she can resume a regular diet. Addeson transitioned from a nasojejunal tube to a surgical one in December 2021, and ongoing medical interventions have yet to significantly improve her condition. She reflects on the adjustments she had to make as a high school student, crediting her support system of family, friends, and therapy for helping her through the ordeal.
Living with a feeding tube has been a considerable adjustment for Addeson, but she remains focused on raising awareness about her condition. She hopes for a day when she can have the tube removed, although the current prognosis is uncertain. Despite the challenges she faces, Addeson’s story serves as a testament to her resilience and determination to thrive despite her health struggles.